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The Strength and Spirit of Caregiving – By Chris Lim

The Strength and Spirit of Caregiving – By Chris Lim

Chris & his 10 year old son, Gabriel

This message was contributed by Chris Lim, IT & Comms Manager


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Dear CaringSG members,

As a caregiver of two, I understand that caregiving can be exhausting, both physically and emotionally. On some days we feel like on top of the world, and on others the weight of the setbacks can feel like the heaviest of weights.

But here’s what I’ve realized: it’s on the stormiest days that we discover our true strength.

Let’s not forget that what we do is extraordinary. Every single day, we make a significant difference in someone else’s life. No act of love, no matter how small, ever goes unnoticed.

We are not just caregivers; we are life-changers, warriors, unsung heroes.

So right now I wish to say thank you. Thank you for your tenacity and your selfless love. Each one of you is a beacon of hope and a pillar of strength for the ones you care for, and for the entire community.

Let’s keep leaning on each other, learning, growing, and most importantly, CARING.

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“We are not alone” – One family’s experience with the CAREwell Community Support Programme

“We are not alone” – One family’s experience with the CAREwell Community Support Programme

CAREwell
The Teys (from left): Rachel (7 years old), Mrs Tey, Mr Tey, and Ryan (13 years old)

This article was contributed by the Teys and the CaringSG CAREwell team.

The Teys

When our CaringSG CAREwell Keyworker, Lee Xiuhua, first met the Teys at their home, they were overwhelmed with their son’s, Ryan’s, behaviour and worried about his future.

“Ryan was climbing all over his mum, he tried to burn food with a lighter, he drank water from my water bottle and kept trying to snatch my pen, among other behaviours. I could see that Mrs Tey was at a loss as to how to manage his behaviour,” says Xiuhua.

Mrs Tey was a foreigner at that time. Not only did she feel isolated in Singapore, she also did not feel confident enough to navigate the healthcare system nor engage with Ryan’s teachers confidently. Ryan, 13, has autism, and was attending Grace Orchard School (GOS) but Mrs Tey was unsure as to how much she could lean on the school for professional support and how to gain access to it.

At that time, Mr and Mrs Tey were also in a dilemma as to what to do for the future. Should they live in Vietnam or Singapore? Ryan appeared to fare better in Vietnam but Mr Tey worked here in Singapore. The Teys also preferred their younger daughter, who is seven years old, to be educated here.

Mr and Mrs Tey’s relationship was also a little strained as Mr Tey as the sole breadwinner, was stressed about the high cost of hiring private psychological support for his son, and Mrs Tey felt that she was unable to manage Ryan who was growing bigger and stronger every day, especially when he became aggressive and hit back at her.

By Caregivers, For Caregivers

As a caregiver herself, Xiuhua was able to deeply connect with the Teys and understand their struggles. They felt that they were not alone in their journey of caregiving.

One particular concern shared was Ryan’s persistent negative texting to Mr Tey. Ryan expressed he is a bad student and always disappointed his teachers or parents. Xiuhua explored Ryan’s texting habit and checked with GOS’s psychologist to find out what the underlying reasons could be.

After some discussion, it was related to Ryan’s developing self-awareness that he had let down his teachers or parents when he was unable to meet their expectations. Ryan would ruminate on the negative aspects of his behaviours and wander around the neighbourhood roads alone which posed a safety concern. This was Ryan’s way of indirectly seeking his father’s approval, affirmation, and unconditional love.

With this in mind, Mr Tey was more aware of Ryan’s emotional needs and connected with him by replying to his texts with words of affirmation and love. This has helped reduce Ryan’s negative texting, habit of wandering the streets, and improved their father-son bond tremendously.

“(We) often find it comforting to share our journey with someone who understands how tough caregiving can get…the support getting from CAREwell help the parents especially cope with our emotions and experiences and show us that we are not alone.” – Mr Tey, father of 13-year-old Ryan

Professional Care and Guidance

After doing a thorough needs analysis, Xiuhua was able to better understand the Teys’ daily struggles, existing strengths, and dreams for the future. She then guided the couple to develop a few key functional goals which they could immediately work on together.

1. Expanding and deepening the Teys’ ecological system of support

A top priority was to get Ryan’s behaviour under control at home. To this end, Xiuhua worked quickly to put the appropriate services in place, expanding and deepening the Teys ecological support system.

For instance, she guided them on how they could obtain a subsidized psychiatrist’s appointment to assess Ryan for his impulsive and aggressive behaviour. She also connected the Teys to several parent support groups and shared online resources with them to improve their mental and emotional well-being.

2. Empowering Caregivers to optimise available community resources

A monumental shift, however, would take place at multiple levels when a joint home visit was made with Grace Orchard School whose team consisted of a Psychologist, Social Worker, and Ryan’s Form Teacher.

Firstly, with Xiuhua’s encouragement and support, Mrs Tey felt empowered to share candidly about Ryan’s behaviour at home which was greatly at odds with how he was behaving in school. This was a big step for Mrs Tey who previously felt self-conscious of her English language proficiency and lacked the confidence to engage closely with school professionals.

Secondly, the team from GOS listened carefully and shared behavioural management strategies with the Teys that were tailored to Ryan’s needs. Both Mr and Mrs Tey felt heard and well supported emotionally and professionally during this joint visit. Empowering the Teys and facilitating the joint home visit enabled the optimization of resources that were previously available but untapped on.

Thirdly, following the joint visit, the Teys felt confident enough to implement some of these strategies at home. For example, in the past, Mr Tey would pamper Ryan and give in to his demands, but this made things hard for Mrs Tey who could not then enforce boundaries with a growing teenager who could easily overpower her. Nowadays, Mr and Mrs Tey agree on and enforce boundaries as a team. “This way, Ryan knows that he can’t outplay his parents,” Xiuhua explains.

Today, the family is happier and feels equipped with the appropriate strategies and support in place. That has made a lot of difference to the family environment at home and Mrs Tey no longer fears for her safety nor is overwhelmed by Ryan’s care. In fact, she is so inspired by the service she has received that she shared that she would like to train to become an EIPIC special needs teacher in the future!

“Everyone gets knocked down sometimes; only people like you (Xiuhua) get us back up again and keep going. Absolutely excellent in all ways. The care was exemplary. My family really appreciated the support and assistance given to my son, your kind and caring always very helpful to parents who seem to go the extra mile for their children in need. Everything would be better if more people were like you. A big thank you to all the staff of CAREwell team. [sic]” – Mr Tey on the support his family received from our Keyworker, Xiuhua.

From left: Caregiver Mrs Tey Phan Thu and CaringSG CAREwell Keyworker Lee Xiuhua

Xiuhua’s reflection

It has been an honour and privilege to journey with the Tey family as their assigned keyworker. Getting to know both Mr and Mrs Tey and hear their story shared so openly, encouraged me to draw out the resilience I saw in them and give them the encouragement they needed to continue their caregiving journey.

Their humble self-reflections, concern and love for Ryan was evident at each touch point and interaction. The Teys committed to the 6 touch points as planned and agreed goals could be worked on in a timely and efficient manner. I enjoyed witnessing the beautiful bond they had with Ryan and am also inspired in return by how they have grown closer during the past 6 months.

Working with families often require trust and open communication which was evident while working with the Teys and for that, I am thankful they put their trust in me to journey with them in the CAREwell Community Support programme.

I was also encouraged by Ryan’s SPED school (GOS) for the open collaboration to hold the joint home visit. Having a conducive and caring special needs school environment did help Ryan develop well and address the parents’ concern promptly. I would like to acknowledge the hard work and professionalism of GOS team. Kudos to all professionals working tirelessly in the special education sector!

What is the CAREwell Community Support Programme?

The CAREwell Community Support (CWCS) Programme is a six-month programme consisting of at least six touch points. Each family is supported by a Keyworker who is typically a trained professional in social work, healthcare, special needs, or other related professions.

Keyworkers support families by providing transdisciplinary and multi-layered services which may include but are not limited to therapeutic and informational counselling, family support plan development and service coordination, navigation, and integration of cross sectoral services.

Applicants to CWCS are screened for suitability before being enrolled into the programme. For more information, please visit https://caring.sg/CAREwell/

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CaringSG Community Events In May 2023

CaringSG Community Events In May 2023

The month of May was another eventful month for CaringSG as we had lined up exciting events and talks for our caregivers from Boon Lay, Kampong Glam and Telok Blangah.

6 May 2023 Massage Therapy for Caregivers (Telok Blangah Community Club)

We understand that caregiving is a tiring task and caregivers do need some “me” time and respite along the journey. In order to help caregivers to relieve tension and enhance their well-being, CaringSG organised a massage therapy for caregivers on 6 May 2023.

They were treated to a rejuvenating massage session by skilled therapists while our volunteers helped to engage their dependents with simple games and activities. 

9 caregivers and their special needs dependents turned up for the therapy session from 10am to 12pm. Light refreshment were also provided for all participants.

This event was supported by 1 CAREkaki, 3 CaringSG staff and volunteers, 1 CAREchampion, the Enabling Lives Initiative (ELI) Grant funded by Tote Board and managed by SG Enable, Temasek Foundation and Telok Blangah CCC.

13 May 2023 Deputyship and Special Needs Trust Talk (Boon Lay)

The next caregiver engagement event (talk) was held on 13 May 2023 at Boon Lay Community Club from 2pm to 4pm. The talk focused on providing caregivers with practical knowledge on the requirements and process on applying for deputyship. Our speakers also shared the relevant information on how to set up a special needs trust.

4 caregivers turned up for the talk and we were glad that all of them had a better and deeper understanding on Deputyship and Special Needs Trust after interacting with our speakers and other caregivers.  This event was supported by 3 CAREkakis, 3 CaringSG staff and volunteers, 1 CAREchampion, the Enabling Lives Initiative (ELI) Grant funded by Tote Board and managed by SG Enable, Temasek Foundation and Boon Lay CCC.

20 May 2023 Purple Outing to SEA Aquarium (Kampong Glam)

The last activity for the month was a Purple Outing to S.E.A Aquarium on 20 May 2023. S.E.A. Aquarium is one of the world’s largest aquariums and it is home to more than 100,000 marine animals! Caregivers and their dependents had the opportunity to get close-up with the vast array of aquatic life and participated in the various learning journeys available at the aquarium to better appreciate the importance of preserving our oceans and its marine animals.

A total of 16 caregivers and 10 of their special needs dependents turned up for the event and it was supported by 14 CAREkakis, 2 CaringSG staff and volunteers and 2 CAREchampions. It was really heartening to see both caregivers and their dependents enjoying themselves during this outing. 

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CaringSG Volunteer Appreciation Day 2023

CaringSG Volunteer Appreciation Day 2023

CaringSG held our first Volunteer Appreciation Day on 27 May 2023, Saturday, at the National Volunteer & Philanthropy Centre.

We welcomed 50 volunteers across various CaringSG Project 3i programmes to meet up and mingle with one another over lunch and games. 

After the Opening Address by Board Co-Chair Dr David Ang, volunteers enjoyed mini games which tested how well they knew each other, with lots of laughter and fun, and smiles all around.

Some volunteers and CaringSG staff who have not had the chance to meet in person, could finally meet face to face and bond over food and games. Others caught up with fellow volunteers they had not seen face to face for a long while and had a good long chat.

To show our gratitude for our volunteers’ contributions, we prepared appreciation videos showcasing their efforts and impact on caregivers and the community.

CaringSG Board Chair Dr Lim Hong Huay also gave a speech to thank volunteers, and she presented certificates and tokens of appreciation to our various groups of volunteers at CaringSG’s Volunteer Award & Appreciation Ceremony. 

We are immensely grateful to have the support of all our volunteers, and deeply cherish our time with you in our collective efforts to support special needs caregivers and their families.

Scroll down to see photos of our Volunteer Appreciation Day!

We welcome volunteers to sign up with us at caring.sg/volunteer

 

Opening Address by CaringSG Board Co-Chair Dr David Ang
Volunteer games underway with lots of laughter and smiles
Volunteer Appreciation Speech by CaringSG Board Co-Chair Dr Lim Hong Huay
CAREambassadors: volunteers at CaringSG events
CAREkakis: trained grassroot leaders
CAREchampions: caregiver volunteers at CAREconnect events
CAREwell: professional volunteers
CAREbuddy: trained caregivers who provide other caregivers with support and listening ear
icare! gala dinner volunteer

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The Heroic Spirit Of Caregivers – By Board Member Sylvia Lim

The Heroic Spirit of Caregivers – By Board Member Sylvia Lim

This message was contributed by Board Member Sylvia Lim

Dear CaringSG members,

“I think a hero is any person really intent on making this a better place for all people.” – Maya Angelou

In my eyes, this quote encapsulates the heroic spirit that caregivers embody every day. What they do may go unnoticed but takes incredible strength, resilience, and compassion.

CaringSG is set up with the overarching objective to support, enable and empower caregivers of special needs in our community. At times when these caregivers feel like no one else understands what they are going through, they can draw strength from this community, knowing that they are not alone in this journey. They can lean in for support, share resources, exchange ideas and uplift one another.

In the words of Helen Keller, “Alone we can do so little; together we can do so much.”

By coming together, we at CaringSG hope to pave the way towards a more inclusive community for the special needs and their caregivers. To continually encourage and inspire caregivers because they are so pivotal to making the world a better place for those who need care and whom they care for.

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Celebrating Courage, Persistence And Love – By CAREwell Volunteer Dr Tang Hui Kheng

Celebrating Courage, Persistence and Love – By CAREwell Volunteer Dr Tang Hui Kheng

This message was contributed by CAREwell volunteer Dr Tang Hui Kheng. 

 

Dear CaringSG members, 

If we focus only on the black, we may miss out on the possibilities of other colors. 

Journey with fellow caregivers allow us to catch a glimpse of how different colors can be used to form a beautiful picture, often in unexpected ways. 

In the process, also finding out the colors we already have, mixing colors to create new ones. 

And together, all forming a collage of masterpiece celebrating courage, persistence and love.

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Every Parent Should be Able to Enjoy and Love Their Child – By CAREbuddy Dylan Lau

Every Parent Should be Able to Enjoy and Love Their Child – By CAREbuddy Dylan Lau

This article was contributed by CAREbuddy Dylan Lau, a 41-year-old engineer and proud father of a wonderful son attending Pathlight School. He is pictured above (right) with Frieda Chan (left), his CAREbuddy trainer, and Yvonne Tai, a fellow CAREbuddy.

The journey of being a caregiver to a child with special needs can be both rewarding and challenging. Over the years, I’ve learned the value of resilience, adaptability, and the importance of a strong support network.

I was first introduced to the CAREbuddy program by fellow caregiver Edward Chan, who posted about it in the CASPER PSG Facebook group. The idea of giving back to the special needs caregiver community appealed to me, especially since I had previously attended CaringSG webinars that offered valuable insights on supporting my child. Motivated by this, I decided to join the CAREbuddy training program, which took place from February to March 2022.

The training program was an enriching experience that helped me gain the confidence to approach fellow caregivers seeking support. Experienced trainers like Frieda and Anand equipped us with useful techniques and tools. I remember Anand telling us at the end of the training, “We just want to help. To give other caregivers hope that they can competently and confidently parent their child and lead them to enjoy and love their children.” This resonated with me, as I believe every parent should be able to enjoy and love their child.

Supporting different caregivers with their unique challenges has broadened my perspective. I learned that we are all on the same journey, albeit at different phases. Sometimes we may feel helpless, but we are never alone. It’s essential to check in with caregivers around us to ensure no one falls behind or gets lost.

As a caregiver and CAREbuddy volunteer, my mission is to support and encourage fellow caregivers in their journey of raising children with special needs. I truly believe in the power of community and the difference we can make when we come together to share our experiences, insights, and love for our children.

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CaringSG Feb and Mar 2023 Needs Assessment Events @ Kampong Glam

CaringSG Feb and Mar 2023 Needs Assessment Events @ Kampong Glam

In order to check on the well-being of caregivers (such as financial, health and social), CaringSG conducted a needs assessment exercise for caregivers residing at Kampong Glam on 12 Feb and 18 Mar 2023.

                                                                             Kampong Glam CAREkakis and CaringSG preparing for the needs assessment

During the house visits, staff and volunteers also asked about the caregivers’ daily caregiving duties and whether they required any additional help as some of them might not be aware of the existing government schemes or avenues to seek help from.

A total of 23 families were engaged during the 2 dates (13 families in February and 10 families in March) and both outreach events were also supported by Enabling Lives Grant Initiative (funded by Tote Board and managed by SG Enable), Temasek Foundation, and Kampong Glam CCC.

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CaringSG Community Events in April 2023

CaringSG Community Events in April 2023

April was a busy month as CaringSG organised several events in Telok Blangah, Kampong Glam and Boon Lay.

1 April 2023 Caregivers Get Together (Telok Blangah)

On 1 April 2023, a caregiver get-together was held at Telok Blangah Community Club from 1pm to 3pm.  There was also a crafts workshop especially for the special needs dependents.

A total of 15 caregivers and 5 Special needs dependents turned up for the event. The purpose was for the caregivers residing at Telok Blangah to get to connect with one another over light refreshments. In this way, they would be able to know who to approach for support and assistance in the event of need. 

This event was supported by 3 CAREkaki and 6 CaringSG staff and volunteers, the Enabling Lives Initiative (ELI) Grant funded by Tote Board and managed by SG Enable, Temasek Foundation and Telok Blangah CCC.

1 April 2023 Raya Festive Distribution (Kampong Glam)

On the same day, 9 CAREkaki, 2 CaringSG staff and volunteers, 1 CAREchampion, 2 CAREambassadors from William Blair and another 2 CAREambassadors from NUS Yong Loo Lin also participated in a Hari Raya festive distribution to 33 families in Kampong Glam. It was indeed a fruitful day for Team CaringSG!

15 April 2023 Yoga Workshop (Boon Lay)

The third event was a yoga workshop which was held at Boon Lay Community Club on 15 April 2023 from 3pm to 4pm. 1 CAREkaki and 2 CaringSG staff and volunteer were there to help with the event.

During the workshop, caregivers and their dependents learnt various Yoga techniques like stretching, breathing and meditation which could help them to de-stress when they needed a short respite.

A total of 4 caregivers and 3 special needs dependents turned up for the event. Even though the workshop was just an hour long, it was a good opportunity for caregivers to connect with other caregivers and their loved ones and experienced the benefits of Yoga together.

This event was supported by the Enabling Lives Initiative (ELI) Grant funded by Tote Board and managed by SG Enable, Temasek Foundation and Boon Lay CCC.

15 April 2023 Give and Take Distribution (Kampong Glam)

Last but not least, there was also a “Give and Take” distribution session at Kampong Glam on the same day with 10 CAREkaki as well as 1 CaringSG staff distributing goodies to 50 families.

Stay tuned for CaringSG outreach and community events in the month of May!

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You have the power to save a life – 4 Mar 2023 CPR + AED Training (Boon Lay)

You have the power to save a life - 4 Mar 2023 CPR + AED Training (Boon Lay)

According to the Singapore Heart Foundation, immediate application of Cardiopulmonary resuscitation (CPR) and automated external defibrillator (AED) can increase a victim’s survival rates by as high as 50%. In fact, taking a course will enable one with the confidence to spring into action to perform CPR or use an AED during an emergency.

To equip caregivers the skills and knowledge to perform CPR and use an AED, CAREkakis (who are trained grassroot volunteers by CaringSG), organised a CPR + AED training session for Boon Lay caregivers on 4 March 2023.  The training session was conducted at Boon Lay Community Centre from 2pm to 6pm with a total of 8 caregivers and 1 special needs dependent participating.

During the 4-hour training session, participants were taught the correct techniques of performing CPR safely as well as the steps on how to use an AED properly in conjunction with CPR. Participants were also certified once they had successfully fulfilled the passing criteria.

This course was supported by 2 CaringSG staff and volunteers and 1 CAREkaki and also by the Enabling Lives Grant Initiative funded by Tote Board and managed by SG Enable, Temasek Foundation and Boon Lay CCC.

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