be the writer of the lives we choose to live by - By Diana Lim
“Only we ourselves, can be the writer of the lives we choose to live by. As a special needs caregiver, I choose to embrace it with an open mind and a willing heart.”
When my elder son was born, the entire family was practically on cloud nine as he was the golden grandson, the precious one. Any hint of suspicion that this precious boy might be facing any developmental delays or falling out of “range” was brushed aside. However, as the issues persisted, the instinct to quickly start speech therapy, occupational therapy and customized educational program took over. Imagine doing all this while holding a big tummy with number 2 in tow…
I would never have imagined that I would be blessed with not one, but two special needs children!
For many of us who often questioned why our child is so different from other special needs kids, take it from me when I say that autism is indeed a broad spectrum. With the same home and school environment, same parenting style, the two brothers were polar opposites when it came to their tolerance level to schedule changes, learning preferences, cognitive abilities, and many others.
I’ve since then learned to unlearn the so-called correct ways of handling autistic challenges. To put down my expectations as a mother so deeply invested in their well-being. To let them be themselves so they can gradually carve their unique identity as special individuals in spite of their neurological impediments. To have a willing heart, and an open mind.
These are some pointers that I can share as a caregiver, someone who has been blessed with good spousal and family support, practical and emotional resource pool, as well as a great network of people who simply understands.
- Always look for the simple things to be thankful for despite how the day or ‘night’ has turned out to be.
- Learn from others to see if their strategies are applicable to our children/dependents at their current stage. At other times, be ready to let go of things which do not fit into their psyche.
- Find several support groups that can serve various needs – it can be like-minded friends, parents support groups, playdate groups, hangout groups, etc. And just like friendships, they may come and go as our seasons of life change. It’s okay; be open to forming new ones.
- It’s okay to not be okay. It’s absolutely normal to feel vulnerable. By being able to rough out bad times and reach out to lifeline help available to us, we are in turn building our own emotional resilience. Imagine what a good real-life experience it would be when we share how we coped and learned from our past experiences with our special needs loved ones!
As special needs caregivers, conquering the day is not always about this amazing feat or that significant improvement. It is more often than not, being able to achieve some form of peace in the never-ending daily noise and action.
Other Updates
A Day On The Dragon Boat, 13 July 2024
On 13 July 2024, CaringSG and volunteers from the Kallang Water Sports Centre organised a fun-filled afternoon on the Dragon Boat for 14 caregivers and 9 care recipients.
Kampong Glam CNY Festive cheers Distribution
It was indeed a great joy and privilege to work with the grassroots and community to share the bliss and joy with these caregivers during this festive season by distributing goodie bags to them.
Paddle & Clean with Singapore Paddle Club on 8 October 2023
Instead of the usual land activities, CaringSG partnered with 10 volunteers from the Singapore Paddle Club (SPC) on 8 October 2023 to bring caregivers and their care recipients out to sea!
CAREcottage Feature – Crochet With Love: A Crochet Interest Group
Crochet With Love is a crochet group for caregivers to crochet on a regular basis for respite care and charity.
CAREcottage Feature – YoungStarSG: Handcrafted Cards and Orange Enzyme Cleaners
YoungStarSG is a ground up initiative that helps youths/adults with autism to work from home, as a form of purposeful engagement and to earn an income.
CAREcottage Feature – Crochet_Connectz: Handmade Crochet Gifts
Hi, I’m Ling, a full-time caregiver and owner of Crochet_Connectz, an inclusive microbusiness that sells crochet, amigurumi and handcrafted gifts.